Come be part of a community of survivors and caregivers in a safe space to share stories, learn from others, and help us create a TBI clinical trial research group!
The virtual meetings are monthly at 3 pm EST and you can register here: https://zoom.us/meeting/register/tJAqc-upqjMtGdd_vXj4jBuM5aJM5MOU03Lq
Lynne Becker. MSPH is the researcher/developer/CEO of Power of Patients (https://www.powerofpatients.com/). This is a patient-centric traumatic brain injury system tracker designed to capture the narratives of people with TBI as well as their caregivers. It’s a very simple dashboard to use and it identifies patterns of symptom progression over time, develops subgroups of baseline injury data, symptoms and therapeutics, and aggregates data in a secure dashboard for strategic partners in clinical trial research. It also helps patients identify behavioral and emotional triggers that they can then share with doctors and therapists.